DIPG Survival Rates

While research over the last ten years has helped improve treatment for DIPG patients, and somewhat increased life expectancy, the prognosis is still not good – with the median survival range being from 8-11 months.

There are several known long term survivors though there is no commonality to those cases. However, research has shown some factors and/or trends that appear to indicate patients surviving longer than 2 years. These include:

  • The patient being younger than 3 or older than 10 years of age
  • Having fewer symptoms at diagnosis
  • Having smaller tumors on MRI at diagnosis, with less evidence of extension beyond the pons
  • Having an HIST1H3B mutation